Friday 29 March 2019

My 3 yo has 2 tumours


My 4yo has 2 tumours on her brain. The left one was quite large. I found it through taking her to an ophthalmologist because her vision was quite poor and she was super clumsy. It took 4 months to get in to see her!Anyway she did some testing and said she had a pale optic nerve, her eyes were turning inwards and her head was turning inwards to compensate for her sight so she would send a referral off to an outpatient neurologist and they would call me. Over the course of the weekend though She vomited once and kept on complaining of a stinging headache behind her forehead. So I called her back on Monday and she said take her to the ER straight away and she would fax the referral to the registrar. We were in ER for ages and they decided to do a CT scan. That’s when they found the mass on her brain. The senior specialist of paediatric oncology came to see us and said it’s unusual and she has to stay on the ward.She had an MRI scan and it showed the tumours in more detail so they booked her in for surgery on Thursday which took 6 hours and the goal was just to relieve some pressure off her brain, not to remove it all.She had another MRI and then she came home on Wednesday night. At this stage they know it’s a glioma so she will have to have chemo weekly for a year as well as numerous other types of therapies. On top of this I have to contend with my abusive ex partner and have to play nice for her sake. It’s exhausting and I’m lost. via /r/Parenting https://ift.tt/2WAwkvc

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