Monday 27 February 2017

Son diagnosed with Waardenburg syndrome type 3


My youngest son last week was diagnosed with Waardenburg syndrome type 3 which I guess that specific type is rare. He still has to undergo a lot of testing and will more than likely need glasses. Has anyone else's child been diagnosed with Waardenburg syndrome? Also for parents who children have been diagnosed with any syndrome how do you cope with the feeling of guilt. This syndrome won't affect his development in any major way just will need glasses, will lose his hearing over time to what extent is unknown, has to have surgery to have ring and pinky separated as right now they are conjoined and possibly have a small hole in his heart waiting to get an EKG to see if that's the case. But I still feel like I did something wrong. via /r/Parenting http://ift.tt/2lLgBdb

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