Friday, 13 April 2018

Son diagnosed with Ehlers-Danlos Syndrome


My younger son was recently diagnosed with EDS hypermobile type. His joints are hypermobile (double jointed) and are more prone to dislocations and sprains. Chronic pain and fatigue are common with EDS. His spine has to be monitored as well since scoliosis can be present.My son is 8 and is a very active boy. He is on multiple sports teams and loves running around. The specialist were amazed at what he can handle given his condition but warned us about him playing contact sports because it can worsen his condition. He does currently play contact sports but will likely have to stop in the near future for his own protection.I never heard of this prior to my son's diagnosis and haven't met anyone else with EDS. I tried joining some online support groups but they were very "woe is me" and that's not my style. I don't really see my son as any different than he was before and just want to support him. He knows he has EDS and what that means but it's hard for him to wrap his head around at his age. He asked me tonight if this means he'll never get to play football in high school. It's hard for him to process and I was wondering if anyone had been down this road or has any resources on how to help children deal with this at a young age.Thanks and God Bless. via /r/Parenting https://ift.tt/2Hwc9YO

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